For Policy Makers.
Making migraine a European health,
social and research priority.
EMHA CALL TO ACTION
Migraine in Europe
Time to act now!
Migraine is a neglected neurological disease that affects over 41 million people in the European Union (EU). It is labelled as the second leading cause of disability in the world and the third in people below 50.
The European Parliament (EP) and its members have a pivotal role to play in tackling the migraine challenges.
EMHA calls upon all national and EU policy makers to fully embrace the migraine challenge and build a supportive environment that will improve the quality of life of EU citizens.
The European Parliament
Migraine Alliance.
An Alliance of Members of the European Parliament advocating to make migraine a European priority and improve the lives of people living with migraine across the European Union.
The Alliance will rally all Members of the European Parliament (MEPs) who agree to help steer policies and initiatives that will improve the quality oflife of EU citizens, contribute to the sustainability of healthcare services and promote the inclusion of people with migraine at all levels (education, work, family life…).
Joining forces with the European Migraine and Headache Alliance and its 33 members at national level, the MEPs will help tackle these challenges by raising awareness and fostering cross-border EU collaboration.
PROJECTS
Policy Makers Projects
The EU has a clear added value in spearheading initiatives that will benefit patients and their families in each EU Member States.
Cooperate to improve the life quality of all the migraine sufferers community.
TOOLKIT EUROPEAN PARLIAMENT MIGRAINE ALLIANCE
Make migraine a European health, social and research priority
Spread the political message that concerted action is needed in the field of prevention, diagnosis and treatment of migraine, research and social policies.
Migraine Action Plan
EMHA’s contribution to the European Commission’s preparation of the ‘European Disability Strategy 2020-2030’
EMHA, EBC and EFNA Joint Position on the European Parliament Draft report on a pharmaceutical strategy for Europe
EMHA contribution to WHO first draft of the Intersectoral global action plan on epilepsy and other neurological disorders
EMHA contribution to WHO Intersectoral global action plan on epilepsy and other neurological disorders
Portuguese EU Presidency EMHA’s contribution to the EU social summit 2021
Migraine Day of Action 12th September
EMHA Call to Action.
Migraine in the EU: bringing women out of the shadows
For migraine sufferers, their life is a waiting room.
According to the 2021 Access to Care Survey conducted at European level by the EMHA, migraine patients have to wait an average of 8 years to have a correct diagnosis and to access an effective treatment. Be active and claim for migraine patients’ rights by signing the statement.
EMHA PROJECTS
Raising awareness to change the future under #TheMigraineMovement
Stigma survey 2023
Migraine & Stigma Survey 2023 In 2023, the EMHA conducted a comprehensive pan-European digital survey answered by 4.210 people across 17 countries. In order to examinate the origins of stigma surrounding migraine, its impact on patients, and their need for better understanding and support. The survey covers various topics such as patients’ ease in sharing
Women at work
In 2018 EMHA organised a survey among migraine patients working in 7 EU countries (Ireland, Italy, France, Germany, Portugal, Spain and United Kingdom.
The survey shed light on how women have to juggle between migraine attacks and work.
The Migraine Assistant
After launching The Migraine Movement Manifesto, from EMHA, we set the goal to inform the largest amount of European migraine sufferers about the existence of that movement, born with the aim of giving them visibility, answers and support.
Explaining Migraine
We realized that the words we normally use to describe our relationship with migraine simply fall short to convey the true feeling behind. Words like “pain” or “horror”, commonly used to describe a migraine, ended up being generic adjectives that linked our disease to a simple headache.
The Missing Lesson
The lack of medical training is the main barrier for an accurate diagnosis when a possible migraine patient first visits a doctor. In the world, only 4 hours of migraine are studied in medical training.
Migraine At Work
The objective of this study is to know the situation of migraine workers within the workplace and compare the situation in the different participating countries.
European survey.
